So, I was nominated to do the ice bucket challenge, and I have sat here watching video after video on friends and celebs take it on – and it got me thinking, I sure hope they’re all giving back. What a fantastic trend to take over the world – the notion of giving back – yes, its the viral hit of the year – but it has also brought to light the issue of ALS and raised tens of millions of dollars for the cause. That said, I think it’s a far greater thing to focus on finding your own cause, than simply watching each other writhe in cold discomfort for the amusement of others. Finding your own way of giving back. Whether volunteering at a homeless shelter, (after all, Miley Cyrus advocating for homeless youth at the MTV movie awards has brought it to front page), or making a financial donation, (Be it $5 or $5000), find your cause and affect change. So, this week, instead of telling you how to spend that left over money – I implore you to pay it forward. Think about donating the money you may have spent on a cool new dress or shoe and give it to a cause far more fabulous….
That said, I wanted to advocate for my own cause. About 2 months ago our dear friends, Nick and Klara, found out that both of their young boys, Theo( 3 years old) and Oskar (1), have Duchenne’s disease. Duchenne’s is a rare form of muscular dystrophy that effect almost exclusively boys. I had never heard of Duchenne’s but quickly read up on it… It basically means these boys, and all the other boy like them will have their muscles slowly degenerate until they can no longer walk, talk and eventually breathe. Generally, Duchenne boys (as they’re called) will be wheelchair bound by the age of 12 and have a life expectancy of 20-25 years old. Even though there is currently no cure, there is hope. There are a number of recent developments which could mean longer, better quality of life. Sadly, more funding is the key to more research. As you can imagine, my darling friends are pouring every ounce of energy into raising money for the cause and so, I too, would encourage anyone reading this to consider donating and passing this forward. Please click on this link to to read more of their story and learn how to donate As the mother of a little boy, it is heartbreaking and beyond comprehension what they must be going through. You can also donate to Harrisons Fund, an organization dedicated to fighting this deadly and debilitating disease. Giving back means we have the power to make a difference. Please find your cause, or check out mine – together we really do have the power to save lives, change lives and make the world a better place.